At 42 Degrees

At 42 Degrees

Wednesday, April 17, 2013

So, Now What,...



Denied and Denied!


A double whammy:

Warm and fuzzy Insurance panels feel that Isaac's speech therapy needs are not within their purview, while the county education guidelines will not provide - summer speech services - since Isaac did not regress during spring break - a whole week.

Not whining here. This is just real life, but Isaac still has speech and developmental needs.

So, now what?

Soon only too soon we'll be leaving the sheltered cocoon of The Bell Center with its Early Intervention Classes - an intimidating thought - because we have such caring professionals at our disposal.

On the bright side, post graduate: Isaac will, this summer attend a two day a week class at the Bell Center, and he does qualify for two, full days of special education preschool this fall, and his wonderful, amazing speech pathologist is working with us - every other week - as our budget allows.

But yikes! There still seems to be lots of gaps in his treatment plan,...because hello,...if Isaac is going to learn to communicate it is NOW,...not when he regresses,...OR shows more serious symptoms,...I would think having a severe difficulty being able to speak would be serious enough.

Unfortunately - our problem is far from unique from what I gleam from other mothers. Seems to be lots of denials out there with the greatest denial being these professionals, who naively think our children are going to recover without any assistance, either that or they are too cowardly to just say: TOUGH.

That's the gist.

What's the answer?

I am not sure, but as a woman of faith, I truly believe - all things work to the good.

Denials aren't fun, and its hard to see any good coming from them when my son has such pressing needs, but faith isn't about seeing an obvious out come.

No matter how many denials are flung into our face, I will never stop working with Isaac!

I only wish I knew more about what I am trying to do with our home speech therapy - because I feel like I am shooting arrows in the dark, here.

But, we will continue living our daily lives, discussing our activities, signing everything within our rapidly growing signing vocabulary, laughing a lot, because Isaac is so filled with joy, and exploring this wonderful world that my little one seems to experience in such a unique way.

Denial is not the end!

Romans 8:28

New International Version (NIV)
28 And we know that in all things God works for the good of those who love him, who have been called according to his purpose.


Until I post again,...may God bless and keep you!





















Monday, April 15, 2013

One Life Touched,....



Just a little over a year ago,...with Isaac's diagnosis of Apraxia, we pushed open the door to the Special Needs community,...not exactly sure where we were or if we were even in the right place.

Since then, I like other special needs mothers have been reaching out,...blogging,...but even more important reading others blogs,...to learn, to be inspired, encouraged,...to laugh a little,...cry a little and pray a lot.

Thursday evening while going through my blog roll,...I clicked onto: Love That Max
sometimes, I link-along on the generous Weekend Link-up,...but more often,...I just check out some of the other moms and their stories,...feeling part of a community really helps during those times,...when you feel soooo alone.

Max's mother, Ellen,...shared a prayer request for Gavin from: Chasing Rainbows
A tragically quick illness has threatening this beautiful little boy. My husband and I were both touched by his story and prayed for Gavin and his family.

Sunday evening Gavin's mother, Kate blogged about their loss and the beauty of Gavin's passing and the generosity of his ability to heal others with his donated organs.

Three days,...only three days,...was I aware of Gavin's existence,...and yet I cried at the news of his passing with glupping sobs,...I cried for and with his parents, his little brother, his family and friends, and others who knew this amazing little boy.

One life touched,...my life,...for I am a better person for having known Gavin, even ever so briefly,...stronger, wiser,....and yes,...happier,...because his legacy is joy,...the joy he brought to his parents, his siblings, his family and friends,...and me,...a perfect stranger,...on the other side of an electric circuit,...who will not forget the lessons taught over the past three days,....kindness,...generosity and JOY,....

Thank  you,...Gavin.

Until I post again,...may God bless and keep you!

Thursday, April 4, 2013

And Now We Wait,...



Today testing went well at the Children's Hospital and now we wait for the doctor's diagnoses which will not be ready until mid-May....



Fortunately this morning, Isaac was Isaac, undiluted, so the doctor had an opportunity to fully observe and evaluate Isaac's developmental delays and communication challenges. However, it's hard, very hard to hear professionals speak of Isaac's Apraxia as being severe. 



But severe Apraxia or not,...Isaac doesn't have any trouble communicating his love and his joy and he is a very happy kid. It's such a blessing to have more laughter than tears in our home.


Until I post again,...may God bless and keep you!

Prayers,....please




For those who pray,...prayers are needed for Isaac,...today he is to be tested at the Children's Hospital for his special needs,...the other developmental delays other than Apraxia....


Thank you.


Until I post again,...may God bless and keep you!