At 42 Degrees

At 42 Degrees

Thursday, February 6, 2014

Picture Perfect,...

When my middle son, Michael's girlfriend text this picture to me,...
I thought it looked like an ad for a sitcom,...picture perfect,...
with no issues,...visible,...


But it is actually very rare to get Isaac to look at a camera,...


Any images I capture are while my little guy is in action,...and hopefully not noticing the camera,...


Just Isaac's 4th birthday,...alone,...I took over 500 pictures,...to get maybe 30 acceptable,...and out of the 30,...maybe 3 that were spectacular,...like this one of our little guy blowing out all those candles.


More often than not,...I get blocked views,...as when Isaac is getting unnerved by the sticky sugar glaze on his fingers,...not that,..that stopped him from consuming the rest of that donut!!!



Sensory issues are a part of what Isaac deals with,...with his autism,...textures matter, (gooey stuff is not friendly to him)...space matters, (he can concentrate better in a confined space, such as a chair with sides),...and eye contact,...which he doesn't initiate can be a challenge,...but Isaac tries to overcome his challenges,...and thankfully he is actually very friendly and initiates social contact, not just with us, but with others,...like my son's girlfriend Valerie.

As for other sensory matters,....Isaac tries to taste other type foods,...most he rejects,...but some he loves like Mud Milk, a frozen milkshake like treat with kale and soy milk, no less,...and ketchup!

Just watching Isaac eat his French fries with ketchup is a JOY,...because he really,...really likes ketchup,...but it falls into the ooey-gooey category which he circumvents by precisely and I am talking surgically precise,...dips the fry into the ketchup with a pincher grasp and then opens his mouth as wide as it will go to consume the fry WITHOUT the ketchup coming anywhere near his lips,...believe me,...no smeared - ketchup-mouth with Isaac,...


Unless we are using sign language most people don't realize Isaac's communication challenges,...because it's not a visible disability,...and for most, very baffling,...because Isaac's hearing is perfect,...and it's difficult to have to explain,...my child can hear, but not speak (much) or rather not speak readily,...because Isaac communicates within his expressive vocabulary such as: "Daddy work" - can mean, "Daddy's at work." "Daddy's not home" "I miss Daddy" "Where is Daddy" "When is Daddy coming home." - it's all context and a bit of guessing and asking and hoping you are understanding correctly,...but fortunately Isaac is very patient with me and my communication challenges,...and it's pretty amazing how well we do communicate without a 'typical' flow of conversation. 


We're grateful Isaac has taken to sign language,...its a visible language cue for him,...that helps him,...and let's us be a little more precise about his needs,...wants,...and,...likes....and he's even silly with it,...like any other four year old,...like when he deliberately got stuck in this tree and asked for  "HELP" - signing and saying, "Mama help." --- although we both knew he didn't need help,...but he was exploring his language and social barriers,...and YEAH,...that's a great thing!



In a hundred years,...someone could come across a picture of Isaac and NEVER know he has any challenges,...pictures so often look: picture perfect,...but in 2014,...our little guy does have challenges that are baffling to us,...and heartbreaking,...it's true,...no one wants their child to have to trod such a difficult road,...but we are on this road and we will go forward with Isaac,...grateful for each day,...and grateful for what challenges he does have,...because others do have harder roads,...so much harder,...and Isaac is healthy and happy and honestly isn't that what we want most for our children? So what if Isaac can't speak in fluent sentences,...he has a sunshine smile, an intrepid spirit,...and the best hugs and kisses in the world,...and that speaks volumes,....

Until I post again,...may God bless and keep you!









2 comments:

  1. My son's favorite sign was "more", but that was the only one he learned and continued to use even after he started talking. My son is a sensory seeker and just doesn't usually stand still for pictures. He is getting better, but it has to be on his terms. Love your post and posted it here - http://www.pinterest.com/way2goodlife/sensory-seeker/

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  2. Isaac's first sign was 'more'...it's a favorite still,....:)

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