At 42 Degrees

At 42 Degrees

Friday, September 26, 2014

Universe Within

 Our little guy has a double diagnoses: Apraxia and Autism, which turns communication into a paradox as Apraxia makes it difficult for Isaac to say what he wants to say when he wants to say it, pure mechanics of motor processing, while Autism hinders the ability of functional speech for its own sake, such in the phrases: Wherediditgo, Thereitis.

Phases, which Isaac has long mastered and uses functionally in the sense, can't find his cup: "Wherediditgo?" When cup found: "Thereitis." - But breaking down the words to use separately in other functional sentences is not yet a skill Isaac has mastered within his own universe.

Being a generous little guy, Isaac loves to drawn us into his universe to communicate in his own matchless style,...which is pretty much a one-way-street,...fascinating because this kid is chock full of personality and curiosity and do I dare say very high intelligence,...but it is a different universe,...unique, and his,...and at this point that is where we are as we trying to understand the universe in which our son inhabits. Or perhaps trying to understand why we don't inhabit the same universe, for it is almost like Isaac is in a cosmic bubble, we see him, hear him, can feel him, but there is a transparent membrane that separates us,...and that's Autism. 

In the last century having been Star Trek fans, my husband and I both equate communicating with Isaac with the Next Generation episode: Darmok,...where Captain Picard is stranded on an alien world with an alien captain, who desperately wants to communicate, but only speaks in metaphors.

That's Isaac.

His metaphors are colors, numbers, the alphabet, and verbatim lines from Disney movies, Signing Time, Veggie Tales, and 3, 2, 1 Penguins, is all he has,...and Isaac uses what communication skills he possesses brilliantly,...which is why we are incredibly picky about what our little guy views,...we want his metaphors to be good ones,...positive, helpful,...and edifying to help him understand our universe,...because I am sure we're just as puzzling to him. Or not,...Isaac is the only person in our household,...not concerned with his Apraxia or Autism,...he's good, he's loved, and wants nothing more than to play and learn and grow,....and eat popcorn. 


Of course if you can eat popcorn while playing on the iPad,...then life's really good in Isaac's universe,...he's one amazing kid,...

Until I post again,...may God bless and keep you! 

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