At 42 Degrees

At 42 Degrees

Wednesday, October 28, 2015

Missing Teeth, Finding Fred, And A Command Performance

It's been a busy few weeks with school and house renovations and of course therapy appointments, but first things first,...such as Isaac losing his FIRST baby tooth,...this past Monday!!!!

Since this summer, when I've brushed Isaac's teeth,...we've social storied, 
"When big boy teeth come in, baby teeth fall out to make room," 
- every day - every day - every day - 
and it must have worked, 
because Isaac didn't make a fuss about losing a tooth.  

The tooth was loose Monday morning before school, and came out sometime between 8:00-2:40, and that's all I know, because Isaac didn't come home with the tooth, so he either lost it, or threw it away, HUGE sigh, for Mama who has every single baby tooth from big brothers, but no real shock, Isaac even loses baby teeth in his own unique way. 

Most important, Isaac's good with it, and if Isaac is good, we're good, bye-bye baby teeth!!!!

And hello Kitty!

Isaac's therapy appointments have been ramping up to good effect,....lots of good development, developing. Here's Isaac practicing some speech before his speech therapy appointment!!!!

House renovations are still on-going and Isaac dearly loves a measuring tape, which he calls: Count,
and as we work, Isaac measures stuff and counts: "1, 2, 3, ---, 10, 11, 12"  - he's amused and we're able to finish laying floor tile, and paneling and now we're down to trim work, and all that work makes Isaac thirsty,....and he's recently discovered the delights of Coke-flavored slushies,....

Miracle League baseball is winding down, and Isaac is still schooling his buddies, and this past week it was a college baseball team out there helping, and while the ballplayer-buddy was obviously in great shape and could keep up with Isaac, wasn't easy for the buddy,...and no matter how much we warn, "God made I.I. fast,...and he'll run the entire hour," --- the buddies don't believe us, until they experience the exhausting delights of chasing after our little guy, who happily runs with dancing feet and never even breaks a sweat!!!

Not often will Isaac pay attention to a mascot, but this dragon caught his attention, and Isaac was FASCINATED!!!!!

LOOK,...Isaac posing with a mascot?
Hello, is that my child?
Yep,...and it's a very simple reason why.

Isaac thought the mascot was Fred from Big Hero 6

"Hello, Fred," Isaac kept checking the mascot's mouth all night.

From ballgames to culture,...Isaac's a versatile guy.
A local autism charity arranged for a theater group to perform a FREE sensory performance.
Sign us up!
Free culture in a nonjudgmental setting!!!

With his posse in tow,...Isaac showed up for the performance,
but nobody else did,
except one other little boy and his mother,
and a woman who knew the director.
the total audience: 9
with 6 out of that 9 in Isaac's party. 

Talk about unique experiences!!!!!

An entire theater to yourselves?

What fun!
Isaac and Mama even got to go on stage,
too cool,
and the performers were AMAZING!!!!
Those dancers danced as if it were a full-house,
Mama was in tears,
so grateful for the generosity of such talented performers 
sharing their talents with my little guy. 

Not joking here,
Isaac experiences the world in a different way,
and he makes sure YOU do too,
and that includes his first theater performance!!!

Lots of firsts these past few weeks, challenges, new ventures,
and as we look to the future,...we don't know what it holds,
but knowing Isaac,
it will be unique.

Until I post again,...may God bless and keep you!

Monday, October 12, 2015

A Life Less Ordinary,...

Let us set the premise: Our life is different NOT less,...

That said, we do live a life less ordinary there is no getting around it, Apraxia and Autism affect our lives in so many ways. Isaac's signature monograms are not just a fashion statement, but reality which reflect security concerns associated with his inability to clearly communicate - at this time - perhaps one day ISAAC shirts will be just for  fun,...but today they are not.  

Attending a school carnival, for us is just not a fundraising event, but an opportunity to help
Isaac learn about his world and socialization,
fun we don't have to teach,
I.I. already has that mastered. 

Interaction, so vital to our society and so ingrained we don't even think about it,
is a skill,...Isaac is having to learn,
kittens are a good place to start
to learn compassion and kindness,
and 'meow'

Having previously raised two son, I realize so many therapy appointments 
in a little guy's life
is not ordinary.
It's exhausting!
So many demands,
on such a little person.

Another waiting room,
more work,
more demands,
more, "Are we done yet" - expressions. 
It's a lot. 

Short-lived candy is certainly not ordinary,
although I was delighted when Isaac,
dare I say: swiped, this one from me on the way to Miracle League.
"Yum," says Isaac, and he happily signs: candy.
But, despite the great photo opt,
Isaac soon abandoned the lollipop:
Sensory Issues: too icky sticky - got the best of him.

So Miracle League 'fall-baseball' has begun,
and Isaac doesn't get the game anymore than he did in the spring, 
but he has a blast, in his own way,
which is running his Buddy's sneakers to shreds.
Oh dear, it's a hoot, and my husband and I can't help get tickled,
watching these teens try to keep up with our Kindergartener. 
Each week, there is usually a different group of teens, 
I am assuming they are volunteering for community project points,
and that's fine, it's an easy way for the teens to be introduced to the 'happier' aspects 
of special needs individuals.
This past week was a high school fishing team,
and as usually I went to the Buddy circle and asked, "Who is the the best shape"
Hands flew in the air.
"Who can run for an hour?"
Down dropped all the hands, but one,
and teen wasn't the biggest, 
nor did he look the fastest,
but THIS guy had the most compassionate heart. 
I gave the Buddy the low-down,
"I.I. will run, and run, and run, and run,...for the entire hour."
"No problem," says the Buddy a little smugly, "I got this."
"Good luck," I say, and my husband winks at me,
as we both take up our perimeters in the opposite dugouts,
(I did mention we live a life less ordinary? That includes not getting to sit in the stands,
instead my husband and I guard the exits,
cause if Isaac can make a break to explore the ball park - he will)
It only took fifteen minutes before the Buddy was a lot less smug and begging for mercy,
from our Kindergartener.
"RUN!" cried Isaac happily, in reply, "Mark, set,..."
Let's be clear, Isaac takes no quarter,...if you sign up to buddy with him,
your sneakers better be in good condition,
because Isaac happily runs,
pure joy,
sunshine smiles,
you've NEVER seen anyone enjoy movement,
like I.I.
And you know what?
That teen got it.
I was sooooooo impressed, and a little teary,
because thirty-five minutes into the run-fest,
the teen was looking weary,
and I mean like in he was seriously winded,
and I was going to offer some relief,
I went to the outfield,
"God made I.I. fast."
"HE SURE DID," that teen cried, wiping sweat, and then he grinned at me, "But let him run."
"Are you sure?" I gasped,
"Yeah," said that teen, "I've got this."
And talk about determination that Buddy hung tight,
and had a blast!
Another heart, cah-ching 
into Isaac's bank. 
When baseball turns in a marathon,
it's a life less ordinary. 

It is a mere fact due to Apraxia and Autism, our lives are different,
so many activities that other children take for granted,
are not available to Isaac,
certainly not tee-ball,
nor soccer, 
but our little guy is highly skilled in filling the void,
in his own unique way
There is NO LACK, in Isaac's little life,
he doesn't even know it is different,
Isaac just knows 
he is loved,
and for him that's enough,
and for us too.

A life less ordinary in so many ways can be extraordinary. 

Isaac teaches us - to just live - and let the rest be
and that's a pretty powerful message,
for a verbally challenged

Until I post again,...may God bless and keep you!