At 42 Degrees

At 42 Degrees

Monday, October 12, 2015

A Life Less Ordinary,...

Let us set the premise: Our life is different NOT less,...

That said, we do live a life less ordinary there is no getting around it, Apraxia and Autism affect our lives in so many ways. Isaac's signature monograms are not just a fashion statement, but reality which reflect security concerns associated with his inability to clearly communicate - at this time - perhaps one day ISAAC shirts will be just for  fun,...but today they are not.  

Attending a school carnival, for us is just not a fundraising event, but an opportunity to help
Isaac learn about his world and socialization,
fun we don't have to teach,
I.I. already has that mastered. 

Interaction, so vital to our society and so ingrained we don't even think about it,
is a skill,...Isaac is having to learn,
kittens are a good place to start
to learn compassion and kindness,
and 'meow'

Having previously raised two son, I realize so many therapy appointments 
in a little guy's life
is not ordinary.
It's exhausting!
So many demands,
on such a little person.

Another waiting room,
more work,
more demands,
more, "Are we done yet" - expressions. 
It's a lot. 

Short-lived candy is certainly not ordinary,
although I was delighted when Isaac,
dare I say: swiped, this one from me on the way to Miracle League.
"Yum," says Isaac, and he happily signs: candy.
But, despite the great photo opt,
Isaac soon abandoned the lollipop:
Sensory Issues: too icky sticky - got the best of him.

So Miracle League 'fall-baseball' has begun,
and Isaac doesn't get the game anymore than he did in the spring, 
but he has a blast, in his own way,
which is running his Buddy's sneakers to shreds.
Oh dear, it's a hoot, and my husband and I can't help get tickled,
watching these teens try to keep up with our Kindergartener. 
Each week, there is usually a different group of teens, 
I am assuming they are volunteering for community project points,
and that's fine, it's an easy way for the teens to be introduced to the 'happier' aspects 
of special needs individuals.
This past week was a high school fishing team,
and as usually I went to the Buddy circle and asked, "Who is the the best shape"
Hands flew in the air.
"Who can run for an hour?"
Down dropped all the hands, but one,
and teen wasn't the biggest, 
nor did he look the fastest,
but THIS guy had the most compassionate heart. 
I gave the Buddy the low-down,
"I.I. will run, and run, and run, and run,...for the entire hour."
"No problem," says the Buddy a little smugly, "I got this."
"Good luck," I say, and my husband winks at me,
as we both take up our perimeters in the opposite dugouts,
(I did mention we live a life less ordinary? That includes not getting to sit in the stands,
instead my husband and I guard the exits,
cause if Isaac can make a break to explore the ball park - he will)
It only took fifteen minutes before the Buddy was a lot less smug and begging for mercy,
from our Kindergartener.
"RUN!" cried Isaac happily, in reply, "Mark, set,..."
Let's be clear, Isaac takes no quarter,...if you sign up to buddy with him,
your sneakers better be in good condition,
because Isaac happily runs,
pure joy,
sunshine smiles,
you've NEVER seen anyone enjoy movement,
like I.I.
And you know what?
That teen got it.
I was sooooooo impressed, and a little teary,
because thirty-five minutes into the run-fest,
the teen was looking weary,
and I mean like in he was seriously winded,
and I was going to offer some relief,
I went to the outfield,
"God made I.I. fast."
"HE SURE DID," that teen cried, wiping sweat, and then he grinned at me, "But let him run."
"Are you sure?" I gasped,
"Yeah," said that teen, "I've got this."
And talk about determination that Buddy hung tight,
and had a blast!
Another heart, cah-ching 
into Isaac's bank. 
When baseball turns in a marathon,
it's a life less ordinary. 

It is a mere fact due to Apraxia and Autism, our lives are different,
so many activities that other children take for granted,
are not available to Isaac,
certainly not tee-ball,
nor soccer, 
but our little guy is highly skilled in filling the void,
in his own unique way
There is NO LACK, in Isaac's little life,
he doesn't even know it is different,
Isaac just knows 
he is loved,
and for him that's enough,
and for us too.

A life less ordinary in so many ways can be extraordinary. 

Isaac teaches us - to just live - and let the rest be
and that's a pretty powerful message,
for a verbally challenged

Until I post again,...may God bless and keep you!

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