At 42 Degrees

At 42 Degrees

Wednesday, November 25, 2015

Giving Thanks

Trying to celebrate the holidays while renovating a house as been a challenge, especially with our household in such flux, but thankfully Isaac's up to any challenge.

Holiday dinner at school was a way to get some celebrating in,...Daddy had to work, but big brother was able to arrange his work schedule to share some feasting with I.I..

Due to privacy concerns, it was hard to get a good pix,
but Isaac was very glad to see Mama and Teddy at school during his lunch-time.

YUMMY,...kinda,'s easiest to say Thanksgiving school lunches are NOT the same when I was in elementary school, or even when Teddy was in elementary school,
YET,...look at Isaac trying a new food,
Thanksgiving dressing,...that's a biggie with the sensory stuff,
cause Isaac didn't want anywhere near the chocolate cake,
but he did eat a fair amount of big brother's dressing,
cause that's what big brothers are for!!!!

Mama's roll is also fair game.

Tadpoles are a new discovery in class.

And we're thankful to Hopkins (class pet) for helping Isaac learn to link a creature's growth 
egg to tadpole to baby frog to FROG.

Class project poster on this subject is our PROJECT for the holiday break.

We are a grateful people for the progress Isaac's has made this year, and we are most grateful for all of the selfless individuals involved in Isaac's life - helping him to learn and grow - 
and become the best he can be,
which with Isaac is pretty WONDERFUL!!!

Not a typical Thanksgiving this year with all the painting and moving and building, 
but Isaac is in the thick of it,
gloriously happy
and that is what we are most thankful for,
a happy child,
every parent's dream come true.


Until I post again,...may God bless and keep you!

Monday, November 9, 2015

Kindergarten I.E.P. - Our Take

I.E.P Meeting was today,
It was reassuring to see the progress Isaac has made,
and to discuss his challenges with dedicated professionals who listened to my concerns,
offered reassurances, and practical strategies to help Isaac achieve his academic goals. 
Maybe even, a miracle or two occurred. 
Our little guy's academic folder is very, thick and weighty, but so are his disabilities,
in contrast Isaac's joy is feather-light, as our little guys always seems to be dancing on clouds.
Another I.E.P down, whew,...lots of signatures and data codes,
but Isaac's goals are spelled out,
and now the work begins. 

I took this montage to the meeting along with a picture of Isaac,
to introduce our little guy in greater depth.
It's easy to get lost in the isms and codes and lines and lines and lines to sign and date. 
But I wanted to stay centered on my task,
and my purpose,
which is helping Isaac's teachers,
help Isaac,...

There is no cure for Apraxia or Autism,
just help,
to navigate through life.
a Kindergartener's 
Individual Education Plan 
is just a reality of our life.

Until I post again,...may God bless and keep you!

Friday, November 6, 2015

Making Sense Out of Chaos

When life doesn't make sense, what do you do?

A. Have a pity party?
B. Complain?
C. Flip every situation to your own advantage?

Meet Isaac: Master Extraordinaire of Making Sense Out of Chaos, as our little guy can flip any situation into a party!

Lately we've been learning a lot about Isaac's fondness for controlling the narrative, it's a place of safety for him when life is not making sense. If he's in control, he knows what's going to happen, and confusion is kept to a minimum, so more fun can be had by all, and trust me, Isaac wants to include everyone in the fun!

This information is very valuable to us as parents, because, hello, our five year old can't narrate every situation,...wonk, wonk, wonk,...sorry I.I., but that's jest reality, you gotta learn to give-and-take to navigate through society, and it all hinges on: communication. 

The burden is upon us, to communicate as clearly and concisely as possible, especially when new concepts or new situations are being introduced. 

Boundaries have to be established, explained, maintained and guarded, because issues for a child on the spectrum are not cut and dry,...especially when difficult stuff like counting to 100 by 10's is sooooo easy for Isaac to pick up on, but easy stuff like listening to a story or participating in a group activity is sooooo difficult,...and again,'s communication: 

Verbal and visual cues help the most, also remembering some of this stuff is developmental, and I.I. is a BIG, little guy, which can lead to expectations above and beyond what he is presently capable. 

But, then Isaac is always surprising us,...just this past week,...Isaac noticed a rubber band in a parking lot, he picked it up and said, "Look what I found!" - while Mama nearly keeled over in SHOCK, to hear such a definitive statement from our little guy, and to us - that just proves - IT'S ALL IN THERE: words, sentences, observations, jokes, sentiments - everything our son would and could say  - if only the motor processing would cooperate on a consistent basis. 

Perhaps a desire to communicate has something to do with Isaac's fascination with the alphabet, and now words, as he is loving to learn how to spell, simple and unsimple words, as Isaac ran into the kitchen, and signed and said, "Cat, C-A-T" - and of course, per his instructions, I have to repeat the lesson, "Cat, C-A-T" -- he runs back into the living room, while I wait expectantly and it is only a few minutes later, he runs aback into the kitchen, "Hat, H-A-T" - and Mama spells too, as we go through, Mat, and Cow, and then Isaac runs back into the kitchen, "Elephant, E-L-E-P-H _" he looks at me, like "" and I offer, "A-N" - and Isaac finishes strong, "T, Elephant!"

Hard stuff, easy, Easy stuff is hard, and the stuff that totally doesn't make sense,...Isaac takes control, and let's us know - what he does understand as he narrates the events to take place, ".... this, and this, and this, like that." - it's actually a powerful communication tool for us to use to help our little guy, or in other words it's taking a note out of his own notebook and flipping a disadvantage into an advantage

It's taking us a while to learn how to make sense out of the chaos, but we're learning from the best!

Until I post again,...may God bless and keep you!