At 42 Degrees

At 42 Degrees

Friday, September 9, 2016

A Journey Worth Taking

WOW! It is hard to believe it's been four and half years since Isaac was first diagnosed with Apraxia, which is the inability to say what you want to say when you want to say it. The speech disorder involves motor processing not the mechanics of speech. 

This tee-shirt hung to Isaac's knees the year he was diagnosed in 2012!!!!


Isaac was two years old when he was first diagnosed and this journey began. At that time Isaac had only one functional word, "Go!" -- Isaac's signature ISAAC shirts, by the way, are not a fashion-statement, although he does 'rock' them, but a necessity since functional speech is still a major challenge for our little guy,...although he's come a long way in four and half years!!!

Example: Conversation overheard between Isaac and Teddy this week
Isaac: "Good morning Teddy. Say 'Good morning.'"
Teddy: (obediently) "Good morning, Isaac."
Isaac (emphatically) "NO is NOT good morning! It's a GREAT morning!"
Teddy: (stifled laughter) - glances at the clock - it's after six p.m. "Yes, Isaac it is a GREAT MORNING."
Isaac: (very businesslike) - "Yes, it is," - HUGE SMILE to finish.
---- Mama and Teddy exchange a glance ---
Mama: (stunned, amazed, amused) "Did Isaac just say that."
Teddy: (laughing) "Yep,...he did!"


Of course Autism doesn't help with the 'social' appropriateness of communication,...thus Isaac controls the narrative,...even when you think - he's not, he is,...although we are working our way around this challenge. It's kinda like sending telegraph messages to another universe -- the receiving end, may or may not pick up,....and if they do pick up,...their topic of conversation will be VASTLY different from yours,...even when you think it's not, it is,...which sound very confusing, but the symbol of autism is a puzzle piece. But the good news is that Isaac is ALWAYS fascinating,...no matter what is being discussed. 

Four by three foot bear, anyone? 


Isaac has a way of making new friends wherever he goes!!!


Okay Big Bear is actually a Proprioception Tool for our sensory seeking little guy. Don't you just love these mile-long words that apply to your child? It refers to knowing where your body is at all time in relation to space. What? Yeah, ain't it complicated. Children on the spectrum at times have trouble orientating their limbs within their personal space,...thus sensory seeking children will zoom and bump into objects,...to self-regulate,...and if you're going to bump into an object,...it might as well be an uber-cool bear,...not a real,...of course. But Isaac has had a time 'wallowing' no other word applies, upon his new friend. Isaac likes the weight of lifting the bear, tugging it, wrestling (Isaac always wins) and as a substitute for a bounce-house,...Big Bear fills in nicely. 

Our little bear is getting to be a big guy,...
even though still likes Daddy's shoulders when he's tired. 


Another year or two and Daddy will be riding on Isaac's shoulders!!!




Quiet Saturday afternoon,...what to do?


Isaac ALWAYS finds something interesting to do,...


A busy little guy is our Big Little Guy,...


Fall baseball anyone???


Sounds fun,...but we live in the deep south and it is VERY HOT,...even in the evenings.


Isaac does his best to work up some enthusiasm,...



After all there are home-runs to be hit,...


And discussed. 

Mama: "Isaac did you hit the ball?"
Isaac: "Yes." 


A man of few words?
Not exactly, it depends upon who starts the narrative. 
When in negotiation-mode,...Isaac can be VERY verbose.
Still, it is process,...HUGE progress that Isaac can answer a question. 
Give thumbs up.
Negotiate like a pro.
And invite us into his world. 
It is always a journey worth taking. 

Until I post again,...may God bless and keep you!


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