At 42 Degrees

At 42 Degrees

Friday, June 23, 2017


A little rain doesn't drizzle out Isaac's summer fun,...

Rain or shine there are too many things to do, a little tennis. 

Some playground time,...

Too bad we didn't do a video to capture some of that joyful laughter,...

And reality,...

Speech therapy doesn't stop during summer vacation,
which is very good as Apraxia has been making itself felt these past few weeks,
or maybe we're just fully realizing the challenges facing our little guy.
You can see it in his little eyes,
he's got something to say,
but nothing is coming out.
even with all the communication disconnects,
more opinions,
and observations,
and endless questions
are nonstop. 
When motor-processing pathways don't work,
our little guy doesn't sweat it,
instead he goes into creative-mode to get his message across. 
Totally amazing. 

Here's some more reality,...

Getting a Father's Day pix with all our guys. 

"Cooperate I.I.,...that means we work together!" 

Mama got her pix,
and I.I. got lots of fun Sunday afternoon!
Properly dressed of course,
the smock is a tad small,
but the little heart beneath is enormous. 

And utterly adorable!
Come on, can't fake this level of joy!

Swoosh,...can't you just hear the giggles?

Take that, Apraxia, can't affect giggles,...or joy!

It's Isaac choice,
and he ALWAYS choses joy!
And curiosity. 

And helpfulness,...
"I help you," says Isaac,
and he does dearly love a helping task. 
Funny thing about Apraxia is one day I.I. can speak perfectly,
but the next day,
or even from minute to minute,
nothing works,
yet I.I. totally takes it in stride,
nothing is going to stop him from being helpful!

See in these pix Apraxia trying to muddle the communication waters,
and I.I.'s response,
telepathy through those little fingers,
they say,

Unstoppable determination to communicate how cool those fishes are!

Apraxia or apprehension,...can't compete with our little guy's curiosity,
especially with a tight grip around Daddy's neck.  

"Music, anyone?"

Unstoppable joy,...unbound!
Our Isaac dances to his own tune. 

And fearlessly walks his own path,...

"This way," says Isaac with more than a note of authority. 

Speech,...can be taught,
or augmented with devices,
but our little guy's unquenchable joy,
and formidable self-confidence
are priceless gifts,
which cannot taught,
nor purchased,
and combined they are utterly unstoppable. 

Thank you dear Lord for our Isaac,
our laughter,
our joy!

Until I post again,...may God bless and keep you!

Friday, June 16, 2017

It Takes a Special Man to be a DADDY

Father's Day 2017 is almost upon us,...

And no,...that's not I.I. in the picture,...
that pix is over 25 years old.
Our oldest son: Teddy sure is an image of Isaac,
or rather I.I. looks a lot like Teddy in this precious pix,
Teddy helping his Daddy get ready for work. 

We're so blessed to have such a selfless man to care for us,
hard working, 
and such a tender heart for his three boys,
although his first lesson in fatherhood was a lesson of loss,
our first baby
Not a happy ending for a young couple,
but we were bless with two more children,
two and half years apart,...


Our irrepressible pair,
such joys,
and such adventures they had with their very, very, VERY busy Daddy.
No matter how many late shifts,
or double shifts,
this Daddy was a hero to always take time for his little guys:
Trebuchet building,
sub-zero camping,
road trips,
basketball, basketball, and more basketball,
and of course video games.
Mario Brothers,
Oh yeah, Daddy did all the levels. 

Little did we ever dream,...and another son was in our future. 
Teddy was a sophomore at the University,
and Michael jusssssst graduated from High School,
when a solo irrepressible arrived to rock our world!!

Oh yeah,...this is our Isaac,
safe in Daddy's hands,...

Perhaps my husband needed the training ground of 21 years worth of fatherhood,
to so tenderly care for our very special little guy. 
No one wants their child to have challenges,
but no matter what Isaac's challenges are,
Daddy's a hero to be there to help,
to guide,
to support,
whatever is needed,...

Puzzle partner

Bird wrangler,...

Strong arms,
and reassuring presence,...

Strong hand to hold,
should the trail be rocky,...

Partner in adventures,...

Encourager Extraordinaire:
"You've got this I.I.,..."

Gentle patience,....

More patience,...coaching a whirlwind,...

Best seat in the house is whatever seat is next to Daddy!

Even more patience, Isaac tries to instruct
and Daddy turns it into a lesson how to work together,

Who is sillier?
The child in the cellphone suit,
or the Daddy who secured the cellphone suit for his little guy?

You know a Daddy's tight with his little guy if he offers cellphone privileges,...

Daddy and Isaac
make an irrepressible pair themselves!

Our friends all have grandchildren,
but I.I. is like a do-it-yourself grandchild you NEVER have to give back. 

Children are a blessing from the LORD,
and we are so blessed to have our three sons,
and for them to have such 
for a DADDY

So its only been since last year that Isaac's been interested in holidays,
Mother's Day was very special
and we're hoping that Isaac's developing development
will make 2017 the best Father's Day ever!!!

Anyone one can be a father,
but it takes a very special person to be a DADDY!!!

Happy Father's Day

Until I post again,...may God bless and keep you!

Friday, June 9, 2017

Seventh Summer

Hard to believe we've had our little guy for seven summers now. 

What a face!

The only thing predictable about I.I. is that there is NOTHING predictable, 
which means we have to take flexibility to new levels,
as there is no way to know what will work,
and what won't,
unless we try. 

Five summers down and this is the first summer,...
Isaac has been able to participate in our local library's summer reading program.
The meeting/craft room was beyond LOUD,...yet Isaac tolerated the chaos very well,
and was not a bit shy during the coloring period.
"Orange, PLEASE," Isaac shouted down the table,
but during Lego-time,...I.I decided to do-his-own-thing while the others
grouped together to create a joint venture for a super-cool tower. 

The effortless social and communication skills of the other 1st-3rd graders were utterly amazing!
Clearly we've been in a 'therapy' bubble,
but observing the peers,
 only makes what 'communication' Isaac is able to communicate
 seem even more impressive. 
Please let's stress the word - effortless - not one child, aside from mine,
in that craft room had to struggle to find the words,
and utter them in the correct sequence. 
Easy if you can do it,
but such a challenge if Apraxia gums up the works. 

Check out I.I.'s end result,...the lego 'creation' was exactly on par with 
the other children who also chose to do-their-own-thing,
and most important, 
our little guy had a blast!"

Home 'studies/therapy' have been the most consistent this summer than before. 
and Arts & Crafts.

Nicest thing about Arts & Crafts with I.I. is that there is never a mess to clean up. 
"I so busy," said Isaac as he busily painted a little wooden airplane. 
Forget fingerpainting and construction paper,
I.I. wants fine-art materials,
with the attitude,...'if we're going to create,...let's create!'
Nothing half-way about this little guy!

Of course who says learning only has to take place at home?
How about an Urban Garden Crawl?

Or a trip to Japan?

Or a bit of both? If you can get to Japan in about twenty minutes,
that's fast!

What's not to love about a Japanese garden? 

This is not a bamboo forrest,
it's Honey-I-Shrunk-The-Kids's backyard. 
(Isaac's currently favorite movie)
"Watch out for the lawnmower, I.I.!" 

Perfect picnic in a silvan glade.

"Where's Daddy?" - I.I.'s version of a joke.
Our little guy loves to laugh.

And make friends. 
Same day,...different Urban garden. 

Making friends,...on and off the trails. 

Skipping,...not rocks,...but acorns!


Last summer this venture wouldn't have been as relaxing,
social skills are improving as I.I. makes progress on communication. 

But let's be clear,
none of this is easy for our little guy. 
So much to learn,
so much to do,
so many challenges to over come. 

Perhaps this week,...
it was brought home how very severe some of our little guy's challenges are,
his communication disconnects are not minor,
but we were also reminded how much progress Isaac has made. 
No matter what we do have to face,
one thing I.I. does do effortlessly
is happiness.
So much is lost in translation upon the computer screen,
but for those who know our little guy,
know exactly how blessed we are,
Seventh Summer,
and we are so thankful
the joys outweigh the challenges

Until I post again,...may God bless and keep you!